* Empowering Support Services Ltd are a Featured Home Care
advertiser within Maidstone NHS Hospital
Functional Neurological Disorder
What is Functional Neurological Disorder or FND?
Functional Neurological Disorder (FND) is a condition in which individuals experience neurological symptoms—such as seizures, weakness, tremors, or difficulties with walking and speech—that cannot be explained by structural damage to the nervous system, like in epilepsy or stroke. Instead, the issue lies in how the brain functions, not its physical structure.
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Key Points About FND:
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Symptoms are real and distressing, not imagined or intentionally produced.
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Common symptoms include:
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Non-epileptic seizures (also called dissociative seizures)
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Muscle weakness or paralysis
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Tremors or abnormal movements
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Speech problems (e.g., stuttering, slurring)
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Gait and coordination issues
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FND can be triggered by stress, trauma, or illness, but sometimes the cause is unclear.
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Diagnosis is made by a neurologist, often through clinical assessment and ruling out other conditions.
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Treatment often includes a combination of physiotherapy, psychological support (e.g. CBT), and occupational therapy.
It’s sometimes described as a “software” issue in the brain, rather than a “hardware” problem.
Care and support in the community for FND
Our Trained and compassionate carers can support you loved one with a nurological disorder
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Supporting someone with Functional Neurological Disorder (FND) requires a compassionate, informed, and person-centred approach. Here are key ways to offer effective support:
1. Understand the Condition
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Learn what FND is and how it affects the person. Understanding that the symptoms are real and involuntary helps reduce stigma and fosters empathy.
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Be aware that symptoms can vary day-to-day and may include fatigue, seizures, mobility issues, or speech difficulties.
2. Promote a Calm, Supportive Environment
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Reduce stress and overstimulation where possible, as stress can often trigger or worsen symptoms.
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Stay calm during episodes such as non-epileptic seizures—ensure the person is safe, speak gently, and give them space to recover.
3. Encourage, Don’t Pressure
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Encourage the person to follow their treatment plan, which may include physiotherapy, occupational therapy, or psychological therapies.
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It’s important to avoid minimising the individual’s experience by suggesting their symptoms are within their control or not genuine. A supportive and empathetic approach helps validate their condition and fosters trust.
4. Be Flexible and Patient
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Allow extra time for tasks and be patient with communication or mobility challenges.
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Understand that symptoms may fluctuate, and what they can do one day, they might not manage the next.
5. Work with Professionals
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Support them in attending appointments and advocating for their needs.
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Respect advice from their healthcare team, especially regarding physical and psychological therapies.
6. Emotional and Practical Support
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Offer emotional support by listening without judgment.
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Help with daily tasks when needed, but also promote independence when appropriate.
Your not alone with your Functional Neurological Disorder
An FND diagnosis can feel overwhelming and raise many questions. Clear, supportive guidance can help you understand the condition, relate to others’ experiences, and explore your next steps
​Functional Neurological Disorder (FND) is increasingly recognised within the UK healthcare system. Estimates suggest that approximately 10,000 new cases are diagnosed annually . However, due to variations in diagnostic criteria and reporting practices, some studies propose a more conservative figure of around 8,000 new diagnoses per year www.thebraincharity.org.uk
In terms of prevalence, it's estimated that between 50,000 and 100,000 adults, along with up to 20,000 children under 16, are living with FND in the UK . Notably, FND accounts for up to 16% of new neurology outpatient referrals, making it one of the most common reasons for such consultations .​
​Despite its prevalence, FND remains under-recognised, often leading to delays in diagnosis and treatment. This underscores the importance of increased awareness and improved clinical pathways to support those affected.
Community Connections
In today's fast-paced world, feelings of isolation can often creep in, especially for those facing unique challenges. Online support groups can serve as a vital lifeline, connecting individuals who share similar experiences and fostering a sense of community. Lets explores the various benefits of online support groups, emphasizing the importance of shared experiences, resource sharing, and mutual encouragement.
Shared Experiences
Sharing your story in an online support group can be incredibly therapeutic. It not only helps to normalize your feelings but also validates the challenges you face. Hearing others recount their journeys can provide comfort and reassurance, reminding you that you are not alone in your struggles. These shared experiences create a safe space where individuals can express their emotions freely, fostering a sense of belonging and understanding.
Resource Sharing
One of the significant advantages of online support groups is the ability to share valuable resources. Members often exchange articles, therapeutic techniques, and contact information for medical professionals who specialize in conditions like Functional Neurological Disorder (FND). This collaborative approach empowers individuals to access information and support that can enhance their journey toward healing and understanding.
Encouragement
Online support groups are not just about sharing struggles; they are also about celebrating victories, no matter how small. These communities provide a platform for giving and receiving encouragement, which can be incredibly uplifting during challenging times. Whether it's a kind word, a shared success story, or emotional support, the encouragement found within these groups can make a significant difference in an individual's journey.
In conclusion, online support groups play a crucial role in combating isolation, fostering connections, and providing a wealth of resources and encouragement. By engaging with others who understand your journey, you can find solace and strength in the shared experience of community. Remember, you are not alone on this journey.
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Here are several trusted online support groups and communities available for people affected by Functional Neurological Disorder (FND), including patients, carers, and loved ones:
✅ 1. FND Hope (UK & International)
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Website: fndhope.org
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Offers private Facebook support groups tailored to different regions (UK, international, carers, etc.).
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Also provides education, advocacy, and patient resources.
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To join: Navigate to their website and select Support > Join a Support Group.
✅ 2. FND Action (UK)
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Website: fndaction.org.uk
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Hosts Facebook support groups specifically for:
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Individuals diagnosed with FND
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Parents and carers
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Young people and teens
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Offers updates, news, and shared lived experiences.
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Access: Visit their site and follow the links to their Facebook group pages.
✅ 3. HealthUnlocked – FND Action Community
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Website: healthunlocked.com/fndaction
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A public online forum where individuals can ask questions, share stories, and receive support.
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Managed in partnership with FND Action.
What are the advantages of FND care at home?
Receiving FND Care in the safety and familiarity of the home has many advantages, including:
Familiarity
Receiving care at home allows individuals to remain in a familiar environment, maintaining daily routines and surroundings that promote stability and reduce stress. This continuity is especially important for people living with FND, as a consistent setting can positively influence both emotional wellbeing and symptom management.
Independence
Home care encourages autonomy by supporting individuals in making choices about their routines and lifestyle. Care plans are regularly reviewed and adapted to meet evolving needs and personal goals, helping individuals retain control and dignity in their day-to-day lives.
Community
Staying at home enables individuals to remain connected to their local community and social networks. Continued engagement in familiar environments and local activities fosters a sense of belonging, which is crucial for emotional resilience and overall wellbeing.
Comfort
Many clients express a preference for the comfort and security of their own home. Home care removes the restrictions of institutional settings, such as limited visiting hours, allowing for more natural interaction with loved ones. This familiarity supports both emotional comfort and physical healing.
Cost-Effectiveness
Compared to residential care, home care can often be a more affordable and personalised solution. Our services are tailored to each individual's unique needs, providing high-quality care while managing costs effectively.
Conclusion
FND Home Care offers a compassionate, flexible, and practical approach that supports improved wellbeing, independence, and quality of life. At Empowering Support Services Ltd, we are committed to delivering personalised care that empowers individuals and respects their preferences.
How to arrange your support in Maidstone
We offer a free home care assessment where our manager will visit you to discuss your care options. This assessment is designed to ensure that your support is tailored to your specific needs and preferences, allowing us to create a care plan that works best for you.
Area with provide care
Barming, Ditton, Larkfield, Aylesford, East Peckham, Maidstone, Lenham, Harrietsham, East Malling, West malling, Kings hill, Leybourne, Snodland, Halling, Penenden Heath, Allington, Tovil and East farleigh - Please enquire if you are out of the catchment zone
Ask a Question or Book an Appointment Below.
Use our contact information or the form below to book an appointment or get answers to your questions. We will respond quickly to your email.
Tel: 07958 716390
Tel: 07572 869563